I think one of the hardest things about chronic illness is the downswing. Those days or weeks right after you’ve just had a really good spell. You spend the entire upswing waking up and reminding yourself to enjoy it. Don’t forget it’s just a spell. Remember the downswing is normal. These things are cyclical. Those thoughts are often racing in my brain in the times when my body decides it can do all the things!
And then the downswing. It honestly doesn’t matter how much I tell myself the downswing is going to happen, it’s always devastating. So, I thought today maybe I would just talk a little about one thing that’s special because of the downswing to help with my feelings of frustration and loss:
Pain usually wakes me up before dawn. 5:03am today. In these early hours of the morning Brian is sleeping quietly beside me, his 10-12hr…
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